4 things I learned from my daughter’s Ewing’s sarcoma treatment

When my daughter Aaliyah was diagnosed with Ewing’s sarcoma in November 2016 at age 9, I was shattered, vacillating hourly between two nearly unspeakable fears: the fear that she would not survive, and the fear that during the last weeks or months of her life, she would suffer relentlessly. Suddenly, thrust into a life I barely recognized, I struggled to navigate what moms who had gone before me kept assuring me would eventually become “a new normal.” I resisted that idea. The last thing I wanted was for life in a cancer hospital to be our new normal. But time marched on, as it tends to do, and our family did develop a new normal. Eventually, it didn’t feel so difficult to breathe, to eat, to smile, to laugh. Here’s what I recommend to other parents ushering a child through cancer treatment. Take care of yourself In the beginning, this feels next to impossible. For the first several weeks, I could barely sleep, eat or remember to take a shower. Friends brought my favorite foods to the hospital, but most of it went to waste due to my nonexistent appetite. I tolerated orange juice, so I drank it constantly, figuring that at least I was getting calories and vitamin C. I lost nearly fifteen pounds before my appetite returned. While I couldn’t physically nurture myself at first, I did tap into ways to nurture myself emotionally and spiritually. I spent time journaling, praying and sharing my heart online. I also had friends on standby to take my emotionally fragile phone calls at any hour of the night, whenever I...